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Our vision is a future where no one in the UK loses their life to meningitis and everyone affected gets the support they need to rebuild their lives. Meningitis Now is the first meningitis patient group in the world, founders of the meningitis movement and…
Area:
National
Telephone:
08088 010388
E-mail:
helpline@meningitisnow.org
Website:
www.meningitisnow.org
Address
Fern House Bath Road,  Stroud,  Gloucestershire,  GL5 3TJ
The Kawasaki Disease Foundation is a non-profit organisation, a partnership of parents, patients, and professionals dedicated to addressing issues related to Kawasaki Disease. The Foundation focuses on raising awareness, which is critical to early diagnosis and treatment.
Area:
National
E-mail:
info@kdfoundation.org
Website:
www.kdfoundation.org
Address
Foundation based in America, 
The Brittle Bone Society is the national charity that supports individuals and families affected by Osteogenesis Imperfecta (OI). They provide information and support to individuals, their families and friends, and the professionals working with them. For advice and signposting the Support Development Officer is available…
Area:
National
Telephone:
01382 204446
Fax: 01382 206771
E-mail:
bbs@brittlebone.org
Website:
www.brittlebone.org
Address
Grant Paterson House 30 Guthrie Street,  Dundee,  Scotland,  DD1 5BS
An award winning health and hospital information website for teenagers, children and parents.Whether you're coming to hospital for the first time or are already a patient, we have all the information you need about being treated at Great Ormond Street Hospital (GOSH).
Area:
National
Telephone:
02074 059200
E-mail:
Via Website
Website:
www.gosh.nhs.uk/.../children
Address
Great Ormond Street Hospital for Children NHS Trust Great Orman Street,  London,  London,  WC1N 3JH
Lifelites provides specialist entertainment, educational and assistive technology packages to children and young people with life-limiting, life-threatening and disabling conditions in children's hospices. Our vision is to give these children opportunities to benefit from the power of assistive and inclusive technologies to learn, to be…
Area:
National
Telephone:
02074 404200
Fax: 02078 314094
E-mail:
info@lifelites.org
Website:
www.lifelites.org/
Address
Ground Floor 26 Great Queen Street,  London,  WC2B 5BL
Gain is a registered charity based in the United Kingdom that offers support and information to those affected by Guillain-Barré syndrome, CIDP and other inflammatory neuropathies. Providing emotional support to patients, their families and friends. Gain also funds research into these devastating illnesses.
Area:
National
Telephone:
0800 374803
Fax: 01529 469915
E-mail:
office@gaincharity.org.uk
Website:
www.gaincharity.org.uk
Address
Woodholme House Heckington Business Road,  Heckington,  Sleaford,  Lincolnshire,  NG34 9JH
Headsmart is the UK Brain Tumour Charity which aims to enhance the awareness of symptoms of brain tumours in children and young people. The website has a useful symptoms checklist, with the common signs and symptoms of brain tumours in children and young people according…
Area:
National
Telephone:
01252 749043
E-mail:
enquiries@thebraintumourcharity.org
Website:
www.headsmart.org.uk
Address
Hartshead House 61-65 Victoria Road,  Farnborough,  GU14 7PA
The British Nutrition Foundation (BNF) is a registered charity and was established in 1967. It exists to deliver authoritative, evidence-based information on food and nutrition in the context of health and lifestyle. Our core purpose is to make nutrition science accessible to all. On our…
Area:
National
Telephone:
02075 577930
E-mail:
postbox@nutrition.org.uk
Website:
www.nutrition.org.uk
Address
Imperial House 6th Floor 15-19 Kingsway,  London,  WC2B 6UN
Breathe On UK is a national charity dedicated to supporting the families and carers of young people who are life-dependent on mechanical breathing, or long term ventilation (LTV). They also produce a resource for siblings and/or peers which explores and explains the concept of long…
Area:
National
Telephone:
01258 820274
E-mail:
info@breatheon.org.uk
Website:
www.breatheon.org.uk
Address
Marnhull Surgery Church Hill,  Marnhull Sturminster Newton,  DT10 1PU
Forming a family and parenting is an important part of life, with many changes taking place. Both mothers' and fathers' mental health may be affected during this transition, which may influence their child's mental health. Poor mental health in parents can have a catastrophic affect,…
Area:
National
Telephone:
0207 803 1100
E-mail:
Via website
Website:
www.mentalhealth.org.uk
Address
Colechurch House 1 London Bridge Walk,  London,  SE1 2SX