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Metabolic Support UK (formerly known as CLIMB) is the leading patient organisation for Inherited Metabolic Disorders, supporting thousands of families worldwide. Our mission is to provide bespoke support to families, signpost to the best experts, raise awareness amongst the medical, healthcare, social care and teaching…
- Area:
- National
- Telephone:
-
0845 241 2173
- Website:
- www.metabolicsupportuk.org
- Address
- 5 Hilliards Court Sandpiper Way, Chester Business Park, Chester, Chester, CH4 9QP
The Association of Speech and Language Therapists in Independent Practice (ASLTIP) provides information and a contact point for members of the public searching for a private Speech and Language Therapist. For its members, ASLTIP provides support and information on working as independent Speech and Language…
- Area:
- National
- Telephone:
-
0203 002 3704
- E-mail:
- office@helpwithtalking.com
- Website:
- beta.helpwithtalking.com/
- Address
- 71-75 Shelton Street Covent Garden, London, WC2H 9JQ
Cry-sis offers support for families with excessively crying, sleepless and demanding babies. From its modest beginnings, Cry-sis has developed to become a well-respected and national charity. The stated aims remain 'to be efficient and effective in providing self-help and support to parents and families with…
- Area:
- National
- Telephone:
-
08451 228669
- E-mail:
- info@cry-sis.org.uk
- Website:
- www.cry-sis.org.uk
- Address
- BM Cry-sis, London, WC1N 3XX
DEBRA is the national charity that supports individuals and families affected by the genetic blistering skin condition Epidermolysis Bullosa (EB). It funds pioneering research to find effective treatments and, ultimately, a cure for EB and it provides care and support to improve the quality of…
- Area:
- National
- Telephone:
-
01344 771961
Fax: 01344 762661
- E-mail:
- debra@debra.org.uk
- Website:
- www.debra.org.uk
- Address
- Debra House 13 Wellington Business Park, Dukes Ride, Crowthorne, Berkshire, RG45 6LS
Accidents don't have to happen but are the biggest threat to you and your family. We promote safety and the prevention of accidents at work, at leisure, on the road, in the home and through safety / health education. We are a registered charity and…
- Area:
- National
- Telephone:
-
0121 248 2000
- E-mail:
- help@rospa.com
- Website:
- www.rospa.com
- Address
- 28 Calthorpe Road, Edgbaston, Birmingham, B15 1RP
The Children's Chronic Arthritis Association (CCAA) provides a support network for children with chronic arthritis and their families, giving practical help and support through our network and area family contacts.
- Area:
- National
- Telephone:
-
07958 187 600
- E-mail:
- info@ccaa.org.uk
- Website:
- www.ccaa.org.uk
- Address
- PO Box 1281, Cheltenham, GL50 9AG
Our vision is a future where no one in the UK loses their life to meningitis and everyone affected gets the support they need to rebuild their lives. Meningitis Now is the first meningitis patient group in the world, founders of the meningitis movement and…
- Area:
- National
- Telephone:
-
08088 010388
- E-mail:
- helpline@meningitisnow.org
- Website:
- www.meningitisnow.org
- Address
- Fern House Bath Road, Stroud, Gloucestershire, GL5 3TJ
The Kawasaki Disease Foundation is a non-profit organisation, a partnership of parents, patients, and professionals dedicated to addressing issues related to Kawasaki Disease. The Foundation focuses on raising awareness, which is critical to early diagnosis and treatment.
- Area:
- National
- E-mail:
- info@kdfoundation.org
- Website:
- www.kdfoundation.org
- Address
- Foundation based in America,
The Brittle Bone Society is the national charity that supports individuals and families affected by Osteogenesis Imperfecta (OI). They provide information and support to individuals, their families and friends, and the professionals working with them. For advice and signposting the Support Development Officer is available…
- Area:
- National
- Telephone:
-
01382 204446
Fax: 01382 206771
- E-mail:
- bbs@brittlebone.org
- Website:
- www.brittlebone.org
- Address
- Grant Paterson House 30 Guthrie Street, Dundee, Scotland, DD1 5BS
An award winning health and hospital information website for teenagers, children and parents.Whether you're coming to hospital for the first time or are already a patient, we have all the information you need about being treated at Great Ormond Street Hospital (GOSH).
- Area:
- National
- Telephone:
-
02074 059200
- E-mail:
- Via Website
- Website:
- www.gosh.nhs.uk/.../children
- Address
- Great Ormond Street Hospital for Children NHS Trust Great Orman Street, London, London, WC1N 3JH