Debra
DEBRA is the national charity that supports individuals and families affected by the genetic blistering skin condition Epidermolysis Bullosa (EB). It funds pioneering research to find effective treatments and, ultimately, a cure for EB and it provides care and support to improve the quality of life for individuals and families living with EB.
Contact
- Telephone
-
01344 771961
Fax: 01344 762661 - debra@debra.org.uk
- Website
- http://www.debra.org.uk
Venue
- Venue address
-
Debra House 13 Wellington Business Park
Dukes Ride
Crowthorne
Berkshire - Postcode
- RG45 6LS
Service Details
- Additional Information
- DebRA is the national charity working on behalf of people in the UK with the genetic skin blistering condition Epidermolysis Bullosa (EB). It promotes research into the treatment of Epidermolysis Bullosa (EB) and works to relieve physical and mental distress amongst persons affected by the condition. DEBRA works to raise awareness of EB in the wider community, it works closely with specialist EB nurses to produce a range of publications and other materials which provide high-quality, reliable information on EB. It also provides bereavement support visits.
- Referral information
- Self referral by parents/carers, referral from specific agencies
- Age Range Details
- 0 - 19 and adults
- Age Range
-
0 years 0 months to 19 years 0 months
It is recommended that you always check with providers that their service meets your requirements and that any listed activities are still running before you attend. The Dorset Family Information Service does not accept any responsibility for the accuracy of the information or the suitability of any of the services described.
Record Actions
Journey Planner
Address: Debra House 13 Wellington Business Park Dukes Ride Crowthorne Berkshire