Nystagmus Network

The Nystagmus Network is a registered charity in England and Wales supporting people living with nystagmus. Nystagmus is a complex eye condition, characterised by involuntary movements of the eye. The eyes appear to wobble or flicker from side to side, up and down or round and round. Nystagmus causes impaired vision, affecting the ability to focus, speed and depth perception and facial recognition. At least 1 in 1,000 people are born with nystagmus and many more acquire the condition later in life. The Nystagmus Network provides support and information, promotes a better understanding of nystagmus through an annual Nystagmus Awareness Day on 20 June and throughout the year and funds research to find effective treatments. Through its support services, the Nystagmus Network ensures that, following diagnosis, there is somewhere for a family to turn to. We run an information support line, answer enquiries by email and on social media and offer a range of free to download documents for pare

Contact

Telephone
01427 718093
Email
info@nystagmusnet.org
Website
http://nystagmusnetwork.org/

Venue

Venue address
70 Hyde Vale
London
Postcode
SE10 8HP

Service Details

Additional Information

Nystagmus is a form of visual impairment characterised by uncontrollable eye movements. The Nystagmus Network is a UK registered charity number 1180450. We provide support and information, raise awareness and fund research. The charity was founded in 1984 by Vivien Jones after her son was diagnosed with nystagmus when he was three months old. It has grown exponentially from very humble beginnings to the hi-tech digital online presence of today. Please get in touch for further information and to see if we can be of any assistance to you and your family.

Related Links
Nystagmus Network Facebook Page

Special Educational Needs and Disabilities Local Offer

It is recommended that you always check with providers that their service meets your requirements and that any listed activities are still running before you attend. The Dorset Family Information Service does not accept any responsibility for the accuracy of the information or the suitability of any of the services described.

Journey Planner

Address: 70 Hyde Vale  London

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